Long Absence/Explanation/MDS/Non-Hodgkin's Lymphoma

Hello! I have been away a long time.  A lot has happened in life since my last post a year and a half ago.  Paul and I spent a lot of time traveling in late 2018 through November of 2019.  Then there was work and grandson (who is 13 and 1/2!).  When we returned from our last trip in 2019 (a visit to Philadelphia to see our son and to tour Gettysburg, plus a Civil War ball), Paul was diagnosed first with severe anemia, and then cancer (MDS and non-Hodgkin's Lymphoma).  He is going in for a stem cell transplant in May which will hopefully lead to a cure, God willing.
I'm not sure if I will be able to blog much, but in a subsequent post I wanted to post a checklist for pre-transplant patients and caregivers. I also have been posting YouTube videos relating to Cancer Caregivers.  My channel is here: Celeste's Channel.

Portland Photos At Last!

These photos are from our trip to Portland in April.  We did much more sightseeing this time (previous visit was setting Robert up in a new apartment when he first moved there).  As before, all of the food was marvelous.  Portland restaurants can't be beat!

Fabulous view on the look-out

Ty and Me goofing off

These are from the Crystal Rhododendron Garden:

SOMA Kombucha - Yum!

On the way to the falls - what a view!

These are all from Multnomah Falls - Beautiful:

Sad Goodbyes

Our kitty Nugget, who we nicknamed Snuggs, has spent the past several years being treated for bad arthritis of his hips.  Then, about six months ago, he began to lose weight.  We tried three different diet regimens (the vet suspected malabsorption of the intestines, or worse, cancer), but none worked.  He got progressively weaker and stopped drinking and eating.  After discussing with the vet, we made the decision last week to have him put to sleep.

Tyler wanted to be with him when he went.  I was worried that he would feel traumatized, and asked him several times if he was sure.  He held Snuggs as he took his last breath.  It was (is) heartbreaking.

Goodbye old friend

To Portland We Shall Go!

Soon to see these two:

And to have some gloriously fun times as well!

Healthy Living

Which I am struggling with...

I'm not sure if it is age, or being busy, or with the autoimmune issue I'm dealing with (CIRS).  I have really been struggling with eating right and exercising.  But I have been taking some small steps to try and get on track.  We recently had a super warm, sunny day.  I walked to a local market, which is a good fitness walk away from home.  I wore a tank top, put some sunscreen on only my face and forearms (which get hopelessly dark in the summer while the rest of me is as pale as ever), left my upper arms and shoulders to absorb some sunlight.  I got ingredients for some healthy recipes I want to try.  And try one I did.  It was just veggies and a sauce, but it was really good!

Groceries and some flowers for the table (springtime!!)

Steamed veggies with a miso-tahini sauce 

(and my little ducky in his bowl in the background)

Today was cold again, but Grandson wanted to search for Pokemon on the Pokemon Go game.  So we walked very far, probably a mile and a half, or even two.

It's a start, anyway.

Mardi Gras King Cake (gluten-free!)

We had only a small memento of Mardi Gras this year - a King Cake alone.  I was tied up with appointments, and Tyler and Paul went to Boy Scouts.  So no party.  But I had the presence of mind several weeks ago to order a gluten-free King Cake from Sweet Ali's in Glenview.  It was beautifully made, and included the requisite plastic baby (added after baking, of course). It was really delicious!  I was worried about that, and even considered getting a regular cake in addition, but the whole family liked it.  Sweet Ali's is an excellent bakery.  We are fortunate to have them so close.

There's that baby

om nom nom

A Small Collection of Minerals from the Urals (in a Wooden Box)

I liked the book Doctor Zhivago.  At times, it got a little long, and I must admit - the politics got somewhat tiresome.  But it has to be said that the descriptions in the book are stunning. The way the author described food (especially the food), sunrises, landscapes, etc.  Truly poetic.  One part that caught my imagination early on was a part when one of the characters, Misha, an eleven-year-old boy, was on a train where a tragedy had occurred (a suicide). "Misha was examining a small collection of minerals from the Urals in a wooden box - the dead man's last gift."  This little boy made me think of Tyler, and I set out to find one small wooden box of Russian minerals; this would be part prop for Book Club, part gift to Tyler.  I found a lovely wooden box on Etsy.  Perfect: small, six little compartments, beautifully made.  

Then the real fun began at Dave's Rock Shop in Evanston.  The people there are very helpful, and did not seem to mind my rather odd request: six minerals from Russia, that will fit in this box, very pretty ones if you please.  So, I searched through and found some gorgeous specimens.  The only hang up was the last one.  I wanted to have a bright color, but there were no other colorful Russian minerals that I liked.  I broke protocol, and substituted a nice Orange Calcite from Mexico to liven it up.   

To complete the box, I found an old-fashioned looking map of the Urals, copied it and secured it to the inner lid of the box.  I made a key listing the minerals, may eventually put this in place of the map.  But I wanted the Russian map because I brought the box with me to Book Club, where we discussed Doctor Zhivago, on loan for a day prior to being given to Tyler, who will be the new curator of this tiny collection.  

Kitaen Joins Family Game Night

We have three cats.  A white one (Snuggs), and tan one (Donnie), and a black one (Boone, usually called Kitten, sometimes Kitaen - don't ask).  He was having fun the other night, first in a box which he fit into perfectly, then joining us at the table as we played the kids' version of Apples to Apples.

Kitaen usually looks angry, even if he is not!

Epiphany - Chalking The Door

Chalking the door is a tradition that I had never heard about until this year.  The wonders of social media introduced me to this.  Here is an explanation (with the year adjusted for 2017) of what this is all about from the website One Peter Five: "Epiphany marks the occasion of a time-honored Christian tradition of “chalking the doors.” Take chalk of any color and write the following above the entrance of your home: 20 + C+M + B + 17.  The letters have two meanings. First, they represent the initials of the Magi - Caspar, Malchior, and Balthazar - who came to visit Jesus in His first home. They also abbreviate the Latin phrase, Christus mansionem benedicat: “May Christ bless the house.” The “+” signs represent the cross, and the “20” at the beginning and the “17” at the end mark the year. Taken together, this inscription is performed as a request that Christ to bless those homes so marked that he stay with those who dwell therein throughout the entire year."

"Practicing traditions like the chalking of the doors helps us to live our Faith more concretely and serve as an outward sign of our dedication to Our Lord. Our homes are also the place where many of us will make the greatest strides in our spiritual growth, through observance of daily prayer, spiritual reading, and work offered as an oblation to God.  The chalking of the doors of a home encourages Christians to dedicate their life at home to God and to others. Seeing the symbols over our doors can help to remind us, while passing in and out on our daily routines, that our homes and all those who dwell there belong to Christ. It also serves as a reminder of welcoming the Magi gave to Jesus. We should strive to be as welcoming to all who come to our homes to visit us!"

So, this year we decided to do this.  After this Sunday's Mass, we came home, got the chalk, our bottle of Holy Water, and a printed-our prayer.  I lit a "Jesus, Mary, Joseph" stick of incense, and we went outside to our front porch and chalked the door.  Paul held Tyler up on his shoulder so Tyler could chalk the door.  We said the prayers and sprinkled some Holy Water.  I like this ritual!

Little Boy's Baseboards

Tyler's bedroom has been missing baseboards for more years than I care to admit.  Other projects budging into the line have prevented this project.  Time and money have also been in play.  Over the years we have put up the window woodwork, and his closet woodwork and doors.  But the baseboards have been patiently waiting to be installed ever since we found them on a great sale ("Such A Deal!") and refinished them.  I am chagrined to admit that it has been almost seven years.  How is that possible?!!  Here are some of the work-in-progress photos, from those two "warm" days this month, only two more small pieces until all is complete:

Long piece, ready to be cut to size

Paul loves this saw - a Delta Compound Mitre 

- he has gotten so much use out of this saw

Southeast corner, note the window woodwork above it

Shaping the profile to fit - intense work with a Dremel saw

Northeast corner with shaped profile to meet properly in the corner

Little Boy Tries Something Healthy

By his own request, Tyler wanted to make tangerine juice yesterday.  This came out of the blue from a little boy who is not always on board with healthy eating.  He found using the juicer to be fun.

Vacation Photos - Wrapping Up

And so our vacation came to a close.  I do hope we can return here someday.  It was a marvelous place to go.  Although I am not usually that big on travel, the rest of the family is, and I want to be able to make more memories like these.

Vacation Photos (Captiva Cruises)

We went on two cruises while we were in Captiva, on a boat called the Lady Chadwick.  We saw dolphins and other wildlife, and Tyler got to drive the boat.

Lady Chadwick

Flying Dolphin. 

Kristin captured dozens of dolphin photos for us.  

This one was the best.

The captain, teaching Ty the ropes.

All by himself -

Exciting! 

Sierra and Robert - I love Sierra's impish smile in this one.

Julie and Ty

Paul, Ty, and me

Night falls on the water.

Vacation Photos (The Beach)

We loved the beach.  Two of the days had enormous waves during the afternoon, which we jumped in for hours it seemed.  I had forgotten how much I loved that.  And Ty was so brave, jumping over and into the waves just like the rest of us.  These photos were taken on a day where we weren't chasing big waves, so we looked for shells and waded.

Beautiful beach

Paul and me

Ty Boy

A long-haired photo

Last bit of fun before sunset